ROLE network

Relating Outcomes to Lived Experience

Category Archives: consultations

WCA – another Harrington review

Excellent to see that Harrington is emphasising the importance of information from ‘stakeholders’. Please do send in your views – see link below for contact details.

“As you may know, the Secretary of State for Work and Pensions has asked me to undertake a second independent review of the Work Capability Assessment (WCA). This is an important part of the Employment and Support Allowance claim process, designed to determine which claimants
are capable of undertaking work, or work-related activity.

As part of this process, I have today (14th July 2011) launched a call for evidence to gather information from a wide variety of stakeholders on the WCA. I strongly invite you to contribute to the call for evidence by submitting evidence relevant to the questions asked in the document.

The call for evidence and can be found at:

This e-mail is being sent to a large number of people and organisations who have already been involved in this work or who have expressed an interest. Please do share this e-mail with, or tell us about, anyone you think will want to be involved in this consultation. I apologise if this means you receive this message more than once, but stakeholder views really are important to the process.

The closing date for the call for evidence is 16 September 2011 ……

Kind regards,

Prof. Malcolm Harrington CBE”

NICE guidance

There is a current consultation on the draft guidance for ‘service user experience in adult mental health” on the NICE website at

The ROLE network has registered as a stakeholder so that we can send our views in. If you have any comments you would like us to include, please do post them below or drop us an email.

Views needed for PIP assessment criteria

Broken of Britain are pulling together a response about the draft assessment criteria for PIP. They are looking for details from anyone with any health condition, including people who are affected by mental health problems and their supporters. Please do reply to them directly – see their webpage here.

You can also respond directly to the DWP or send in responses from your own group.

We think it is important that views around mental health are included. Our view is that the indicators are very simple and do not take into account how seriously people can be affected by fluctuating conditions.

petition to end DLA consultation

We, the undersigned, urge the Minister for Disabled People to recall the Public Consultation on Disability Living Allowance (DLA) reform, and to cease work on reform of this benefit, due to serious flaws in the consultation paper. As such, the consultation questions are deeply skewed and any answers will be likely to support wholesale reform. This is both unfair and unwise, and will cause hardship for many disabled people….

Sign the petition here

DLA consultation

The DWP are now consulting on changes to DLA (closes 14th February). It is essential that they include views from people with lived experience of distress including service users/survivors and carers.

The consultation is lengthy – there are 22 questions you can answer, and much of it is relevant to people experiencing distress.

We highlight that people who could be in hospital for more than 28 days may want to comment specifically on the removal of DLA mobility component.

Question 7 is  also important  – “How can we best ensure that the new assessment appropriately takes account of variable and fluctuating conditions?”

And also Question 9 which is about how to make the form itself easier to fill in.

Link to the DWP’s site for the consultation on benefits.
It includes an easy read version.

For this consultation they are actually producing a hard copy – but you have to pay £14.75 for it. Available from The Stationery Office which provides the following information about the changes:

Disability Living Allowance Reform
Cm. 7984
Department for Work and Pensions (DWP)
TSO (The Stationery Office)

‘Disability Living Allowance Reform (Cm. 7984)’ explains the Government’s committment to maintaining an extra-costs, non-means-tested disability benefit to support disabled people.

Disability Living Allowance (DLA) has become confusing and complex and the Government proposes to introduce a new benefit, Personal Independence Payment (PIP), in 2013/14 when it will begin reassessing the working age (16-64 year olds) caseload.

PIP will consider the impact an individual’s impairment or health condition has on their daily lives. Support will be prioritised for those who face the greatest day-to-day challenges.

PIP will have two components:

(i) ‘Mobility’ – based on ability to get around.

(ii) ‘Daily Living’ – based on ability to carry out other key activities necessary to participate in daily life.

The benefit will only be available to those with a long-term health condition or impairment: individuals will have to qualify for a period of six months, and will be expected to continue to qualify for a further six months before an award can be made.

There will be an objective assessment of individual need, with no automatic entitlement.

The assessment is being developed in collaboration with a group of independent specialists in health, social care and disability, including disabled people.

The Government is considering how best to take account of use of aids and adaptations, and how they are used and paid for. Awards will be reviewed periodically, but individuals will still be responsible for reporting any changes in circumstances.

The feature of DLA entitling the individual to other help and support will be retained.

Personal health budgets

Please can you help by completing this  personal budgets survey ?

It’s for all service users/survivors and carers, including people who don’t know very much about personal budgets or personal health budgets – your information will help them understand where the gaps are.

The Mental Health Foundation, a national charity, is conducting the survey to collect service user and carer views on personal health budgets in mental health.

A personal health budget tells you how much money is available for your care and lets you agree the best way to spend it.

They want to find out:

  • how much people know about personal health budgets
  • what support and resources are needed to help people access this service
  • how to provide this support.

The survey  will be followed up with more in-depth discussions around the country in the New Year. The ROLE Network is working with the researchers to make sure that views from the North West are included.

If you would like an email or printed copy of the survey to complete, or more information about the survey, please contact Jayasree Kalathil at or 02086409052.

To find out more about personal health budgets, visit the Department of Health’s personal budgets page. This shows a list of the places which have been pilot sites. In the north west this includes:

  • Ashton Leigh and Wigan
  • Central and Eastern Cheshire
  • Cumbria
  • Halton and St Helens

Please complete the survey online here

DH reporting on experience of BME groups

The Department of Health has launched a consultation, as required under the Code of Practice for Official Statistics, to seek feedback on a proposal to stop producing a report on the self-reported experience of patients from black and minority ethnic groups. The collection and publication of the data is unaffected.

Consultation on IMHA role

First-tier Tribunal (Mental Health)

The Tribunal is an independent judicial body that operates under the provisions of the Mental Health Act 1983 (as amended by the Mental Health Act 2007)

The Tribunal has posted a consultation document on draft guidance by the tribunal on the role of independent mental health advocates at tribunal hearings and would like to receive comments and feedback

Download a copy of the draft guidance

Any comments on the guidance document should be submitted by 15th November 2010 directly to

(From NMHDU’s website )

Two more consultations from the NHS white paper

Choice page – “This consultation tells you more about our plans to give people greater choice and control over their healthcare and asks you what you think.”

Information revolution “Our vision is of an information revolution in which people have the information they need to stay healthy, to take decisions about and exercise more control of their care, and to make the right choices for themselves and their families.”

NHS outcomes framework – website

There’s a new website for the consultation on the Outcomes Framework, part of the consultation process for the White Paper.